This programme has access to a unique archive of over 2000 narrative interviews covering more than 60 health conditions collected by the Health Experiences Research Group in the Department of Primary Care Health Sciences at the University of Oxford. Through existing analyses of the narratives, we have identified aspects of health that may be affected by exposure to online patient experiences (PEx). These can be grouped into the broad domains of support, knowledge, decision-making, self-management, health behaviour, and health status.
To build on our existing work, we have analysed 10% of our interview archive with the following aims:
- To gather evidence about how and why information based on real experience is sought and used through thematic analysis using a modified grounded theory approach.
- To select quotes from interview transcripts which illustrate participants’ views on their use of the internet for health information, to help us design a questionnaire to be used later in the research.
This work was conducted by John Powell and Fadhila Mazanderani then at the University of Warwick (now at the University of Oxford and University of Edinburgh respectively) and Laura Kelly, Crispin Jenkinson and Sue Ziebland from the University of Oxford.
Fadhila Mazanderani and Laura Kelly