Workshop on Online Patient Experience and its Role in E-health


About iPExNorthumbria University, Newcastle-upon-Tyne, UK  –  5th July 2011  –  at the 25th Human Computer Interaction conference (HCI2011).


Sue Ziebland – Department of Primary Care Health Sciences, University of Oxford

Pamela Briggs – School of Life Sciences, Northumbria University

John Powell – Health Sciences Research Institute, University of Warwick

Overview of the Workshop

The Internet has an important role in the provision of reliable, relevant and timely health information for the public and patients. Traditionally, authoritative health information has been based on facts and figures, not the experiences of patients. However the rise of patient-generated content on the Internet, in the form of online patient experiences (PEx) has changed the landscape of health decision-making. Online PEx can have both positive and negative influences – PEx can enhance social support, and facilitate adjustment to an illness but can also raise anxiety levels and in an unmoderated format can deliver very powerful but misleading messages. PEx is important for researchers and e-health designers alike and in this workshop we seek to bring the new PEx community together to share new approaches and findings.

Online Patient Experience (PEx) and its role in e-health

iPEx contributions

Being differently the same in the sharing of experiences in healthcare

Health and illness in a wired world: the potential health related effects of accessing patients’ experiences online

Patient experience information online: a content analysis of smoking related websites